Purple Day receives Royal Assent!

July 5th, 2012 · No Comments

Great news everyone! Bill C-278, the Purple Day Act, received Royal Assent on June 28, 2012! This means that March 26th of every year is now legally recognized by the Canadian government as Purple Day, a day of epilepsy awareness, a day where Canadians should wear purple to promote a greater awareness of epilepsy and to support the 300,000 Canadians living with epilepsy!

The following is an official news story from Canadian Newswire about the passing of Purple Day into law: Purple Day now legally recognized in Canada

Congratulations to Cassidy Megan and everyone else behind the Purple Day campaign! Cassidy, your dream is one step closer to reality! We at SECA fully support you and will continue to celebrate Purple Day every March 26th on the University of Toronto St. George Campus!

To everyone else in the world who celebrates Purple Day, keep up the great work! Together, we can make sure the world celebrates Purple Day and everyone is made aware of the impact of epilepsy!

-Alex-

 

 

 

 

 

 

 

 

 

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Impact of Epilepsy on Canadians Survey Results Released!

February 29th, 2012 · No Comments

The following is reported on the English-language version of the Canadian Epilepsy Alliance’s web site:

SERIOUS CHALLENGES FACED BY CANADIANS WITH EPILEPSY REVEALED
During the fall of 2011, many of our members participated in a survey entitled The Impact of Epilepsy on Canadians. Conducted by Leger Marketing and completed by 671 respondents across Canada in both official languages, the survey is the first of its kind in Canada to explore the impact on life and health among adults living with the disorder.

The findings reveal that Canadian adults living with epilepsy are still struggling to control the common seizure disorder, and face serious health obstacles, including access to specialized care and treatment options, as well as numerous social impacts. Canadians living with epilepsy list the following top challenges that need to be addressed:

  • Stigma and discrimination
  • Lack of independence
  • Social and work barriers

The Canadian Epilepsy Alliance urges all Canadians to take a stand in support of those living with epilepsy by:

  • Eliminating the stigma facing those living with epilepsy by supporting greater public education and awareness about the disorder
  • Ensuring access to all safe and effective options for optimal seizure control – right across Canada
  • Expecting and demanding the best possible specialized care, treatment and social supports for Canadians living with epilepsy”
You may recall that we here at SECA reported on and linked to providing input for this survey some months ago. This is excellent information to have and we at SECA urge everyone to go to the CEA’s website and read the report! Thanks to all involved for making this report on the impact of epilepsy possbile!
-Alex-

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The Standing Committee on Health Approves the Purple Day Act!

February 17th, 2012 · No Comments

Excellent news from the Purple Day for Epilepsy Facebook page:

“Canada: Standing committe on Health ( HESA) approved all amendments for Bill C-278 the Purple Day Act indentifying March 26 as a day for Epilepsy Awareness. A new copy of the bill will be printed and it will be presented in the House of Commons for the third round of debate soon. If it passes it will move forward to the Senate for final approval. Thanks to all you you who wrote the committee to share your story of what’s it like for you and/or a family member living with epilepsy. Stay tuned for the next update!”

This is fantastic! Purple Day is that much closer to being officially recognized by the Canadian Federal government! Keep up the great work everybody! Keep contacting your officials and maintain the Act’s momentum!

-Alex-

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Purple Day Passes Its Third Reading!

February 5th, 2012 · No Comments

A further update from our friends at the Facebook page for the Purple Day Campaign:

“Bill c-278 – Purple Day Act will now go back to the standing committee for changes as the title of the bill in French needs to be changed to Journee Lavande. All Members Of the House of Commons were in favour of this bill today. We are not sure when the final reading will take place in the House of Commons yet. When we know the date , we post it so you can once again ask Federal Polticians in Canada for their support. The Purple Day team would like to thank people for sharing and contacting Federal Canadian Political representatives to support this bill. The work we do together is what helps bring awareness on behalf of those living with epilepsy world wide.”

This is excellent news and should give us all in the epilepsy community cause for celebration! Purple Day is very close to be recognized as an official awareness day by federal law! I want to thank everyone out there who helped make this happen by contacting your Federal Members of Parliament (MPs) and getting their support. Keep up the good work!

-Alex-

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Update from the Purple Day Campaign

November 1st, 2011 · No Comments

Our friends at the Purple Day Campaign are making headway on getting Purple Day recognized as an official day of epilepsy awareness by the Canadian Federal Government. I will let a status update from their Facebook page do the talking:

“Canada: Private members Bill C-278 – The Purple Day Act will be presented in the House of Commons in Ottawa on or before November 14th. Bill C-278 will be voted on and if passed with then go on the next stage of this process. We are asking you contact the Federal Member of Parliament that represents you in Ottawa and tell them why this bill is so important to support for those living with epilepsy in Canada. It’s important they know about some of the challenges that people living with epilepsy face such as; the lack of public awareness, education, and stigma associated with the condition of epilepsy. Please reshare with others to help us spread the word. If this bill passes all steps it will mean that March 26th – Purple Day will be recognized as the “Official Day” for Epilepsy Awareness in Canada.”

You heard them, get out there and contact your Federal MP! I will be writing my letter in short order. Only together can we get Purple Day recognized by Canada! Lets raise awareness of epilepsy and fight stigma in society!

-Alex-

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Survey on Impact of Epilepsy

August 19th, 2011 · No Comments

IT’S YOUR CHANCE TO BE HEARD!
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Share your voice!

Canadian adults with epilepsy are invited to participate in a Canada-wide survey:

The Impact of Epilepsy on Canadians

Take a few minutes to fill in this questionnaire that explores how epilepsy impacts health and access to treatment and care.

We need to hear from you!

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