Improving Care

What are some of the current problems in epilepsy care?

  • Inefficiency of care. Patients with drug-resistant seizures may be in the system for some time before they are seen by a specialist in epilepsy. Some are misdiagnosed or improperly treated.
  • Lack of care for the co-morbidities of epilepsy. People with seizures, and particularly drug-resistant seizures, suffer from a number of other, related disorders (e.g. anxiety, depression, memory problems, sexual dysfunction, etc). These are called the “co-morbidities of epilepsy”. These are seldom diagnosed or treated.
  • Lack of community support. Ontario has a number of lay organizations that provide community support. These have no public funding, and their effectiveness varies widely across the province. There is a disconnect between the health care system and the lay organizations. The health care system seldom refers patients to the lay organizations.
  • Lack of public knowledge. Public knowledge about epilepsy is far lower than public knowledge about other disorders such as stroke and heart disease. In particular, there is a lack of knowledge amongst teachers, policemen and women and others who interact with people with seizures.
  • If you think of ways your family doctor, neurologist, community organization, or hospital can better help you, please tell us – we want to know. Please send your comments to